Adelaide was diagnosed 4 days before she was born with congenital diaphragmatic hernia. In short, her diaphragm had a rip in it and all her intestines, bowels, stomach and kidneys herniated into her chest which pushed her heart to the right side of her chest greatly restricting the growth of her lungs, as well as suffering a stroke at 4 days old.
Panos was born April 1, 2010 (very appropriate my funny guy) with Pierre Robin Sequence and was transferred immediately to Sick Kids which became our home for almost 5 months. Since his birth he has been diagnosed with Q10 duplication, severe obstructive sleep apnea, scoliosis, phosphate waisting rickets (causing several fractures), hearing loss, G.E.R.D. to name a few.
Lucas was born with Charge Syndrome in 2004. He is G-tube fed since he was born. Had 5 heart defects and had to have open heart surgery and in aug 2008 was diagnosed with Autism.
Our daughter Elizabeth is a blessing beyond words. Born 3 1/2 months early weighing 1 1/2 pounds she came into this world a fighter and to this day she continues to fight what scars her prematurity has left her.
Our son Casper was born at 26 weeks gestation, he weighed 1lb 8oz and spent 115 days in the NICU in Hamilton. He suffered many obstacles while in the NICU and fought for his life multiple times through suffering 2 bouts of NEC, an allergy to milk protein that ate through his intestine, multiple blood transfusions and many other things.
Ashton has severe cerebral palsy, is 100% tube fed, has a tracheotomy, legally blind and deaf but does hear with a cochlear implant.
Carter was shaken by a daycare provider 9 years ago and left severely disabled requiring medical care 24/7. We were told he would not live past 3 but he has just turned 10! Carter's friends at school are putting a drawing together for him, to use as inspiration for his magical photo!
Tyson was born with severe congenital heart defects including Hypoplastic Right Heart Syndrome and Tricuspid Atresia, among others.
Xavier was diagnosed with brain cancer at 8 months old and by the time he was 1.5 years old he had already gone through a 12 hour brain surgery, chemotherapy and radiation.